Oh my God You will NOT delay. My refuge and strength always. I will not fear. His promise is true. My God will come through. Always. Always. Our hearts rest in Him. Her help is on they way.
We lift our eyes up. Our help comes from the Lord.
Our son Liam Boaz was almost a perfect match. A 5 out of 6...but this was not God's plan. The place were Liam and Shannon did not match is the one genetic strand that can not be accepted by the person receiving the marrow. I was told today by HemOnc staff, "this is so rare to have a near perfect match but then also have a match with this particular strand at the same time."
How can we not see God in this? He is evident everywhere we turn. It does not make it less painful, but it does give us joy in sorrow.
The new plan:
We are told 3-4 months to get the bone marrow donation here for Shannon to receive. Then another 1-2 months for the procedure, engraftment and clearance to go home.They have started looking and have found 5 live donors and 5 cord blood matches. She will continue the following meds daily, acyclavir (anti-viral), cyclosporine (immune suppressor), adavan (gut inflammation, nausea), bactrim (anti-biotic), and IVIG (IGg cells - on an as needed basis).
They can move faster, but I was told that we are in this for the long hall. "It's a marathon not a sprint", the nurse practitioner told me today. I'm sure I haven't digested that information yet. It hurts too much. Home for the holidays I had hoped, but home after winter wasn't even in my radar. As I sit in here in her room by the window typing my hear aches and all I can do is weep quietly. As a family only God can help us cope. Being together will never be taken for granted again.
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